CHALLENGES FACED BY ECONOMIC WEAKER SECTION
HIGH COST OF TREATMENT: Pediatric cardiac care is expensive for the average Indian Family. Average care of treatment is about 2-3 lakhs rupees, which is in a way unaffordable for the vast majority of families. Parents belongs to economic weaker section find themselves helpless to provide proper treatment to their children.
LIMITED RESOURCES AVAILABLE FROM GOVERNMENT SIDE: Heart Disease in children is not identified as a health priority by the government in our country. There is only limited resources available from government side to the economic weaker section families. Central Government is only providing help of 50,000 to the families belongs to weaker section. There is lot of paper work needed for getting approval from the government and most of the families find them helpless to complete the paper work due to illiteracy.
NO INSURANCE COVERAGE: Insurance companies do not cover children with heart disease since they have categorized it as “PRE-EXISTING” disease.
AVAILABILITY OF LIMITED PEDIATRIC CARE IN SOME STATES: There are no pediatric cardiac care programs in several states in India as highlighted earlier. Families have to travel hundreds of kilometres to reach a centre, which is equipped with necessary facilities. Besides expenses involved in travelling and staying in an alien city, there is considerable income loss due to lost work for number of days. This double disincentive often results in further delay to the point of sometimes making it too late for treatment.
FAITH ON TRADITIONAL METHODS: Many families in rural and semi urban arts of India seek advice from unqualified, semi-proclaimed “doctors” and quacks because of common beliefs and myths.
PARENTS ARE USUALLY YOUNG: Children with heart disease may be diagnosed very early in life, first week, first month or first year of life. Parents at this stage may be young enough that they may not have enough savings and grandparents may/may not be having savings. At this stage a family might raise money through loans or mortgage of jewellery or property
NO SUPPORT FROM PRIVATE HOSPITALS: Private hospitals are blind to the financial status of the patients. Admission in a private hospital implies traditionally obligatory bill payment by the patient. By the nature of their business they cannot be excusing payments. For this purpose, expectation of separate payment schedule by BPL families is not usually the case in private hospitals.
POOR DIAGNOSIS: Most of the children belongs to weaker section born without supervision of a paediatrician as usually birth take place in homes, which result into time lag in the treatment. In addition to it, some of the paediatrician especially in rural and semi urban areas, are unable to diagnose CHD children due to inadequate knowledge.