Weekly OPD Program
In India, facilities and resources available for Pediatric Super speciality Care is meagre. Pediatric Super speciality Care requires highly skilled professional and resources which are available in limited condition in the entire country. There is a requirement of at least a thousand pediatric heart centers for all of India. Perhaps because of the specific challenges, dedicated pediatric cardiac programs have been slow to develop in India. As of 2015 it can be estimated that there are less than 50 centers in India with the capability of infant and neonatel cardiac service with a minimum annual caseload of 200 operations. The majority of these are a part of “for-profit institutions” and fewer than 10 of these are in the government sector. In Delhi, AIIMS is the only well-equipped government hospital, which has the capacity to deliver cardiac care for CHD children. Most children born with heart defects require treatment in the first year of their life. To increase the existing condition of Pediatric care, the Child Heart Foundation initiated its Weekly OPD Program at its registered office at South Delhi in partnership with various government hospitals of Delhi and whenever, the Child Heart Foundation came across with families facing financial crunch, the family gets registered. The process of registration is duly followed with proof of income and referral letter from a doctor and after undergoing cardiac evaluation and recommendations. Once a family is confirmed to be in need financial help, they are rostered. CHF next start looking out for avenues to garner resources and thereby support the families.
Reference Ann Pediatr Cardiol. 2015 Sep-Dec; 8(3)
Fetal Cardiology Program
Goal: Early Screening and detection of heart defect for improving health condition.
Target Group: Pregnant Women
Facility: Fetal Echo
Fetal Cardiology and Fetal Echo-Cardiography is a relatively new field to India and has major impact on clinical practice of Sonologists, Obstetricians, Cardiologists and paediatricians. Currently in India few heart diseases get suspected on ultrasound, which is practically the most common way to raise a suspicion.
About Fetal Echo
Fetal Echo is the test done via ultrasound to assess the heart of the unborn baby. It is a special test and requires special training and skill. The screening of the heart abnormality needs to be done during the Level II scan. If any doubt about any structure related to the heart arises or of the hearts particular structure cannot be checked due to baby’s position, then it is best the heart is evaluated by cardiologist.
The Child Heart Foundation have Pediatric Cardiologist in its panel of trustees called Dr. Vikas Kohli who is well trained to assess defects in the heart related to the structure of the heart e.g hole in heart or valve abnormality in the heart. Initial screening may be done by a sonologist but the final opinion should always be taken by the cardiologist. In addition to being a vital organ, it is also THE MOST COMMON BIRTH DEFECT with 1% i.e 1 out of 100 pregnancies being affected.
Pediatric Cardiac Program
Goal: To improve Cardiac Health Condition in children.
Target Group: Children
Facility: Pediatric Echocardiography & Electrocardiogram
About Pediatric Echocardiography
Transthoracic Echo Test is the traditional echo performed from the chest wall. This is the most basic but the most reliable and commonly used test to diagnose congenital heart disease. It is a non-invasive test. It is a test used in children to diagnose or rule out heart disease and to follow children who have already been diagnosed with a heart problem. It diagnosis cardiac problems and guides heart surgery and complex catheterizations. The Echo test consists of 3 components:
- 2-D anatomical diagnosis: The D refers to dimensional. So a 3 D heart is seen on a flat screen and images are integrated by the observer and details of the anatomy outlined based on the test.
- The Color Flow Mapping: In this Color flow is seen similar to how blood is actually flowing in the heart. The flow is color coded blue or red but ot on the basis of color of blood, but on basis of direction of flow.
- Doppler: In Doppler exam, the velocity of blood flow is measured to get an idea of pressures across the lesion or across a valve.
Electrocardiogram is a test used to monitor the heart. It checks the problem with electrical activity of the heart. It basically a process of recording the electrical activity of the heart over a period of time using electrodes placed on the skin. The test is popularly known as ECG or EKG. It is a painless, non-invasive test. Various heart conditions can be diagnosed using electrodiogram. It can be suggested as a part of diagnosing various heart conditions:
- Heart Arrhythmias or irregular heart rhythm
- A heart attack
- Problems of the heart’s valves
- Defects of the heart
- Coronary artery disease
- Cardiac Nutrition Counselling for Infants
Goal: To increase nutritional intake in infants
Target Group: Infants
Cardiac nutrition becomes an issue in children with heart disease with a large shunt and increased pulmonary blood flow. This may be the situation with child who are pink (e.g. VSD) or wit children are blue (e.g TAPVD, Truncus, TGA). All conditions are referred as congenital heart defect.
There are several situations where nutritional issues come up in relation to children with heart disease:
- Child is not gaining weight due to heart problem.
- Child is having heart problem and waiting for surgery; How to increase weight
- Child has had heart surgery for a problem. Before surgery the problem was weight gain and after surgery also the problem is weight gain
- Child is overweight and what needs to be done to make the child healthier.
FINNANCIAL ASSISTANCE PROGRAM
Goal: To provide medical aids to the marginalised families having children born with congenital heart defects.
The prime motive of the child heart foundation is to save lives or in other words to provide healthy and normal lives to the children born with congenital heart defects of our society. Usually the cost associated with the treatment of heart disease is very high and in a way unaffordable for most of the parents. The challenges for parents with children with heart disease are many: they are young, they need a large amount of money usually for treatment, they may need it urgently. Additionally, the general feeling maybe the child may not survive too long, which may not be true. Child with heart disease may be diagnosed very early in life, first week, first month or first year of life. Parents at this stage may be young enough that they may not have enough savings and grandparents may/may not be having savings. At this stage a family might raise money through loans or mortgage of jewellery or property. Local Money lender also take advantage of the situation and provide money to the families on high rate of interest. Treatment of congenital cardiac defects can be a huge drain on family finances, even for the relatively well off. In the unavailability of treatment there always be a treat to the life of a child. Through whatever limited funds we have, we try to disburse medical aid to as many patients as possible.
School Health Program
School Name: Heritage School
Date: 15th November,2016
No. of students: 350
Principal Message: We are thankful for delivering such a knowledgeable and enlightening lecture in our school. The students became aware of the causes of heart disease especially eating junk food quite frequently.
Sunita Swaraj, Principal- The Heritage School
- School Name: Hope Hall Foundation School, R.K Puram
Date: 22nd October,2016
No. of students: 200 students
Principal Message: Thank You for choosing our school for delivering an enlightening talk.
Bhagat Singh, Principal
- School Name: Gyan Bharti School
Date: 5th August,2016
No. of students: 250
Principal Message: Thank You for a very enriching and informative interactive session conducted with our students on the care of the heart. This will surely help the students understand how the risk of heart attacks can be reduced and how it is important to develop healthy eating habits during teenage.
Nishi M. Manglik, Principal
- School Name: APJ School, Saket
Date: 12th July2016
No. of students: 300
Principal Message: I truly appreciate the extraordinary work of the Child Heart Foundation in the field of heart care. It’s always a joyful experience to meet people like Dr. Vikas Kohli who takes out time from their busy schedule for building up the healthy nation. We will totally ban Junk Food in our school canteen after the session as we don’t want our students to be unhealthy.
Anita Paul, Apeejay School
- School Name: Green Field School, Safdarjung Enclave
Date: 10th August,2014
No. of Students: 250
Principal Message: We are indeed fortunate to had the professional expertise from the dedicated team of the Child Heart Foundation to address our school students.
Mrs. Minni Khanna Principal, Green Field
- School Name: Carmel Convent School, ChanakyaPuri
Date: 30th July,2014
No. Of students: 300
Principal Message: We are extremely thankful for the Child Heart Foundation for their enlightening workshop for our school students.
Sr. Joviana Principal, Carmel Convent School
- School Name: St. George School, Alaknanda
Date: 6th May 2014
No. of students: 250 students & No. of Teachers: 100
Principal Message: I sincerely appreciate the Child Heart Foundation for their initiative I helping children with heart disease and addressing the social problem of early heart attacks in younger population – Mrs.Sara George
School Name: Bloom Public School
Date: 31st Jan 2017
No. Of students: 150
Principal Message: It was indeed a pleasure to have Dr. Vikas Kohli at our school on 31st Jan 2017.
His talks on healthy eating and healthy lifestyle for a healthy heart by appreciated by the students and teachers who attended the workshop.
RURAL HEART SCREENING PROGRAM
Goal: To improve cardiac health condition of children living in Rural India.
Healthcare is the right of every individual but lack of quality infrastructure, dearth of qualified medical specialists, and non- access to basic medicines and medical facilities thwarts its reach to 60% of population in India. Managing CHD in as indeed in any developing country is an important issue, often overlooked, despite the enormity of the problem. The resources and infrastructure are abysmally limited. Majority of health institutions are busy with adult cardiac surgery program. Most of Cardiac Care centers are either in southern part of India or in National Capital of Delhi. Unfortunately, most states have least or no resources for treatment of neonates, infants & children with CHD. Heart Disease is the commonest birth defect in children. It occurs in 1 out of 100 children. It most commonly missed in utero evaluation by ultrasound. Cardiac pediatric care needs special skills and equipment’s and Rural India have limited infrastructure and resources for the welfare and treatment of children born with congenital heart defects. For better treatment, families compiled to travels towards metro cities. Travel towards metro cities is an expensive affair. Besides expenses involved in travelling and staying in an alien city, there is considerable income loss due to lost work for number of days. This double disincentive often results in further delay to the point of sometimes making it too late for treatment. and impact on the work. The Child Heart Foundation through its Rural Heart Child Heart Screening and treatment program providing cardiac care at the door steps of people living in Punjab, Jodhpur & Siliguri.
(Reference- Indian Journal of Pediatrics, Vol 72- July 2005)
HEALTH CAMP PROGRAM
An important feature of Child Heart Foundation’s health care initiative for the children born with congenital heart defects is organizing health camps in rural as well as urban areas of the country. We have successfully organised specialized health camps for the children born with congenital heart defects in the areas where no peadtric cardiac facility is available. A specialised health camp has a team of specialised paediatric cardiologists, who diagnosis and provide proper treatment and guidance to the children born with congenital heart defects. Few photograph of health camp. Health Camp Report On, 1st February, 2014, Child Heart Foundation organized free Health Camp in Saharanpur district of western Uttar Pradesh (UP) for making health care affordable and accessible to the underprivileged children of the society. A total of 16 children from 20 days to 13 years of age was diagnosed and treated free of cost during Health Camp of Child Heart Foundation. Poor families covered miles to consult Dr. Vikas Kohli. In the Free Health Camp of Saharanpur CHF seen patients not only from Saharanpur but also from Haridwar and Garwal. Anyone can capture the feeling of happiness on the faces of families who came in the health camp as there is no pediatric cardiac facility available in Saharanpur. Families have to bear the cost of travel and come to metro cities like Delhi to consult a pediatric cardiologist and when Child Heart Foundation provided cardiac facility at their doorstep they were overwhelmed and very thankful to the Child Heart Foundation for its initiative to make “Heart Smile”.
There are ample or no resources available from the government side for the marginalised children for children born with congenital heart defects in India. The Pediatric Cardiac Program is the urgent need of our country for the welfare of poor children born with heart defects. Welfare screening & treatment program of the Child Heart Foundation resulted in improvement of health condition in CHD Children. In Rural Areas, reduction in expense incurred in travelling by people in search of better treatment towards metro cities. More than 5000 children benefited from the Health Talk program. Around 98% of children adopted healthy eating habits. 95% schools banned Junk Food in their Canteen after the session. 99% of students quit smoking. Due to Financial Assistance Program, Children received gift of healthy lives. The Child Heart Foundation added healthy individuals into our society.
- Child Heart Screening in Urban Area: 2081
- Child Heart Screening in Rural Area: 1886
- Health Talk: 2250 students participated
- Financial support for surgical intervention: 8 lives saved