Varun aged 18 years was born in Jaipur, Rajasthan. His lost his mother to cancer at a very early age and has shared a special bond with her grandmother. His grandmother – Promila Devi received a meagre pension after the demise of his grandfather. The family has exhausted all the savings in the treatment of varuns mother and now meeting the daily expenses of the family has also become a challenge.
Varun was diagnosed with Pulmonary Hypertension – a rare life-threatening disease at a very early age. He was referred to Child Heart Foundation after the family had visited a number of Paediatricians in Jaipur New Delhi. On his screening and diagnosis, it was found out that Varun was suffering from Pulmonary Hypertension and required continuous medication and follow up check ups
Varun was immediately registered under the PH Life Care – a program on extending financial assistance to patients of Pulmonary Hypertension. Varuns Grandmother – Promila Devi was counselled about the importance of continuous medicines and the manner in which medicine will be provided.
Child Heart Foundation has been delivering Life Saving Medicines at the door steps of Varun since the last three years along with regular screening and follow up check-ups. The estimated Cost of his treatment including the medical expenses is Rs 1,00,000 for the next one year.
Varun has grown up into a smart young teenager, thanks to the PH medicines he is being advised to take every day. Varun has found a passion in designing posters and infographics. During the second wave of pandemic Varun has also been circulating important information and helping out people in need during the pandemic. His sensitivity towards helping people around him is both a learning and a inspiration