NGO Working for Congenital Heart Disease Children

Story of Heart Warrior- KIYARA - 7 months

Kiara was born on 2nd of October in the year 2020. She was born in Bihar. Her parents were really excited at her birth as they had twins. Their excitement started to cloud when last month around the 15th of May, Kiyara had a high fever and the lower part of her foot started to turn blue. Her father, extremely worried about it, took her to the doctor in the town. The doctor advised them to get a ECHO test in Patna as he suspected the child is showing signs of CHD. Kiyara and her parents travelled to Patna and got a test done. She was diagnosed with CHD. The doctors in Patna advised to take her to Delhi for the right treatment.

The family then travelled to Delhi and while travelling to various government hospitals came across the services at Child Heart Foundation from the web. She underwent the screening for ECHO and was diagnosed with Pulmonary Atresia, Patent Ductus Arteriosus and Large ventricular septal defect. Her parents were really shaken hearing about all these symptoms as till the date they had been hearing negative comments on their child’s survival. Yet, our pediatric cardiologist boosted their morale by assuring them that they will try their best to make Kiyara healthy.

While getting the COVID test done for admission to the hospital for the procedure she was tested positive. Her oxygen levels had rapidly dropped to 51%. At this age, her being tested positive for the virus and her SPO2 levels dropping to 51% were the major challenges. Her recovery journey was tough and her parents were concerned this shall further delay the process of surgery and her CHD condition would get worse. After a couple of days, she tested negative and was clear for the admission process.

She underwent the treatment for BT Shunt through a successful procedure on May 29th 2021 at a hospital with required expertise for the diagnosed CHD and the best pediatric cardiology infrastructure. She was discharged after a couple of days from the hospital.

She has been showing steady signs of progress and been actively playing since her surgery. She is scheduled for her follow up this week at the centre.

Her father says, “We were extremely disheartened at the state our daughter was in, the whole journey in the time of COVID was extremely challenging for us. It has been a boon coming across CHF and the entire team was really supportive to us at this time which helped us overcome this. CHF will always be in our hearts”